Family of 4 - How Are We Doing?

We are slowly adjusting to being a 'family of four'. Key word is slowly. Even so it seems the days are flying by so fast!


So how is little Ty doing?

He continues to feed very well! At night he is very demanding and whiny - Jason and I say he sounds like a little lost kitten making teeny tiny meow sounds. He always wants Mommy to hold him, and he wants to eat about every 20 minutes. I basically become the human pacifier at night. During the day, Ty just loves to sleep. Yes, he has his days and nights mixed up. In the morning, after Jason goes to work, me and the boys just stay in bed. Sometimes we stay in bed until after noon. The boys usually jibber jabber back and forth while I try to cat nap! (Thus needing the ear plugs every now and then).



1 Day Old


2 Days Old


3 Days Old


Aidan 14 Months and Ty 4 Days Old
Ty LOVES to be held. He hates to lie on his back (probably because he has reflux). He handles tummy time well. When Aidan's physical therapist comes once a week, she also does a little work with Ty. We will formally get him enrolled in therapy soon! We are looking to see how his vision is, because Aidan has yet to really focus on anything or track anything. We know for sure that Ty reacts to light and sound - but we will experiment more with how much he can see and such in the coming weeks.



5 Days Old


1 Week Old


1 Week Old
First official sponge bath at home was on Saturday...Yes, I know it took us awhile to technically get him all scrubbed up. But hey - I barely get a shower myself! He is now officially on Aidan's bath time schedule :)



8 Days Old


After his first sponge bath.
Ty's belly button fell off on Sunday, when he was 9 days old. Seems so soon, but hey - I guess he is a fast healer?



10 Days Old
Ty's little seizures/movements are about the same as they have been since birth. They still aren't as frequent or severe as Aidan's, but they are definitely obvious. Nonetheless, he is a little trooper! He is coasting through the days like a champ!

My goal is to post videos SOON - videos of the boys together, of Ty's seizures, and of Ty just being cute!

How is Aidan? Does he know he has a little brother around the house now?



Stretching after nap time!
I am not sure if Aidan realizes quite yet that there is another little body in the house. Ty is still so small, so their interaction is very limited still. When Aidan does hold Ty, Aidan gets really calm and they basically melt into each others arms. It is the sweetest thing! I am sure Aidan is starting to pick up on the late night screams and little kitty noises that Ty makes. It will be so interesting to see their interactions change as Ty gets bigger!

How are we doing as parents?

Well, I am beyond tired. But everyday gets a tiny bit easier. It is all a matter of catching up on things around the house and getting to know the newest little member of our family, while at the same time trying to keep Aidan's schedule the same. I am on the phone A LOT with many different doctors and benefit specialists, and to be honest I am getting no where when it comes to benefits or help for Ty?! Are we the only family with 2 special little kiddos and NO respite care?! Yep.



Ty 3 Days Old - Look how "alive" I look haha!


Ty 5 Days Old
Jason continues to work hard as usual. Up at the crack of dawn, and by the time he comes home we rush to get Aidan's meds and bedtime done, sometimes baths - all while trying to feed ourselves and have a moment to do laundry, dishes, breathe...
I have to say I am so proud of Jason because he has made some awesome advances and accomplishments at his job! So yay for that!! One bummer though - Jason is back in school (his 3rd year!), so some weekends he has class for 8 hours on Fridays and Saturdays. It makes my week even longer here at home with the boys, and his week even longer because he is never at home :(



Ty 2 Days Old


Ty 9 Days Old
Our 2 year anniversary is coming up next week (already?!) and I am hoping by then things will have calmed down even more so we can get a tiny moment of alone time. Or at least a chance to catch our breath.

Phew - well, that is what is up with us as a quad - family of four. A big adjustment, but a welcome one. We are loving getting to know Ty and incorporating him into our home.

We are still appreciating all the support, messages and visits (although I often don't hear the visitors at my door because we are in my room catching up on sleep). Thank you to everyone who checks in with us and wants to know how we are all doing!!